Tuesday 28th February 2017, marks the tenth Rare Disease Day – a global initiative to raise awareness amongst the general public, politicians, clinicians, researchers and pharmaceutical companies about rare diseases and their impact on patients' lives.1
Did you know?
In the UK, it is estimated there are 3.5 million people who will be affected by a rare disease at some point in their lives.2
80% of rare diseases have identified genetic origins whilst others are the result of infections (bacterial or viral), allergies and environmental causes, or are degenerative and proliferative.1
50% of rare diseases affect children.1
This year, the theme of Rare Disease Day is research, ‘With research, possibilities are limitless’1 and at Novartis UK, we are proud to research, develop and provide a range of innovative medicines to help address unmet medical needs, as well as provide information and solutions to contribute to helping improve the lives of people living with rare diseases.
Our work is focused on improving the lives of people affected by several rare diseases including, tuberous sclerosis complex (TSC), acromegaly and Cushing’s disease. For more information about our work in these rare diseases, please click here.
Novartis UK has remained committed to the rare disease community by working collaboratively with patient support groups to provide resources that help increase awareness and education and continues to conduct research in rare diseases.
We joined the Rare Disease Day movement by asking our Novartis UK associates to raise their hands to advocate for research on rare diseases. Follow @NovartisUK on Twitter to see our hands and we welcome you to join us by raising yours using the hashtags #rarediseaseday #NovartisUK.