Patient group support
Patient groups are organisations that represent the interests of patients with a particular disease or condition. They play a crucial role in informing and supporting patients, as well as safeguarding the rights of patients and their carers.
Novartis is committed to supporting the important work of patient groups and to working collaboratively with them on specific projects where there is a shared interest and benefit to patients.
In all our interactions with patient groups, we strive to build relationships based on mutual respect and transparency.
A list of patient groups to which Novartis UK provided support for in 2019 is detailed below.
We publish this information annually for Novartis UK Innovative Medicines division.
June 2020 | COR20-E070
August 2020 | COR20-E070a
£200.00 patient organisation speaker fees to support Rheumatology Pharmacists UK Group annual meeting 18th March 2019.
£2,970.00 sponsorships to support ARUK - PsA Campaign Work 8th April 2019.
£40,000.00 patient expert / speaker fee or consultancy to support Versus Arthritis - PsA PAC Consultancy 9th July 2019.
£25,750.00 grants to support "Arthur's Heroes" printed anthology of real life stories 7th November 2019.
£10,390.00 grants to support Breast Cancer Care Younger Women Together With Secondary (YWTS) service in Bristol 28th October 2019.
£17,868.00 grants to support Blood Cancer Alliance Funding 4th February 2019.
£25,000.00 grants to support Young Women Together service - Bristol 4th February 2019.
£45,000.00 grants to support The taskforce for lung health 5th September 2019.
£19,200.00 grants to support Policy Campaigns & Engagement Programme, Year 1, 18th November 2019.
£11,000.00 membership fees to support Genetic Alliance RDUK Membership 25th July 2019.
£5,000.00 membership fees to support Genetic Alliance RDUK Membership 29th August 2019.
£7,000.00 grants to support GIST Support UK Outreach 21st January 2019.
£219.44 patient organisation speaker fees to support Speaker Fees paid in a Patient Group Summit 11th March 2019.
£25,000.00 grants to support Buddy service, counselling support services 12th August 2019.
£10,410.00 grants to support Porg for Annual Patient Conference 1st April 2019.
£3,345.00 sponsorships to support Britain Against Cancer (BAC) 1 day conference 28th January 2019.
£10,000.00 grants to support 2019 Patient Conference Funding 21st January 2019.
£5,000.00 sponsorships to support 2019 Patient Conference Sponsorships 18th November 2019.
£2,000.00 grants to support Sun Safety Awareness Campaign 9th December 2019.
£10,507.00 grants to support Migraine information and support project 24th June 2019.
£28,000.00 grants to support Regional Patient Meeting Series and patient information booklets reprints 18th November 2019.
£6,000.00 sponsorships to support MS Frontiers Biennial Conference 23rd September 2019.
£1,600.00 sponsorships to support MS Trust Annual Conference 15th August 2019.
£27,000.00 sponsorships to support MS Trust Annual Conference 22nd August 2019.
£495.00 patient organisation speaker fees to support The SpA Academy HI-5 Meeting 2nd January 2019.
£7,425.00 patient organisation speaker fees to support NASS AS Disease Awareness Campaign 11th February 2019.
£30,000.00 sponsorships to support NASS Aspiring to Excellence 8th April 2019.
£11,500.00 grants to support the Secretariat for Axial Spondyloarthritis All-Party Parliamentary Group - 2019 22nd July 2019.
£20,852.12 grants to support the NASS Voices Community Engagement Conferences 2019 22nd July 2019.
£19,196.63 grants to support GP Masterclass to improve the lives of the migraine community 18th January 2019.
£660.00 patient expert/speaker fee or consultancy to support Advisory Board - Proposed Patient Facing Campaign 18th March 2019.
£25,000.00 consortium to support Impact of inherited retinal dystrophies project 18th March 2019.
£77.45 3rd party in-kind services to support Advisory Board IRD - Patient travel costs 3rd June 2019.
£5,000.00 sponsorships to support Retina UK Professionals Conference and Annual Conference 24th June 2019.
£400.00 patient organisation speaker fees to support Advisory Board - Attendance at voretigene neparvovec 5th August 2019.
£124.75 patient organisation speaker fees to support Advisory Board - Attendance at voretigene neparvovec 27th August 2019.
£2,300.00 patient organisation speaker fees to support Advisory Board IRD 10th September 2019.
£29,744.06 grants to support Broadening the range of eye health information services 7th January 2019.
£10,548.00 membership fees to support Industry reference group for neurological diseases 13th September 2019.
£15,000.00 grants to support Patients Association National Helpline and Information Service 4th July 2019.
£8,000.00 grants to support Patient Education Material - Symptom Assessment Tool Reprints 1st April 2019.
£12,500.00 grants to support Sickle Cell and Thalassaemia APPG Funding - 2019 18th March 2019.
£10,182.00 grants to support Visionary annual conference 2019 28th October 2019.