Advanced breast cancer (ABC) is more than just a personal tragedy – it is a social problem for the people concerned, their families and friends, and society as a whole.1
67% of women living with ABC in the UK said they often feel like no one understands what they are going through.2
The Here & Now campaign aims to raise awareness of ABC and the realities of living with the disease, in order to improve the level of care and support available.
Through an in-depth understanding of the disease landscape, we can work together towards providing women living with ABC the much needed support they require.
The patient story
The reality of living with ABC
Research has shown that women with advanced breast cancer (ABC) often feel isolated from those involved in the fight against early breast cancer.1
As part of the UK Here & Now campaign, a patient survey was commissioned by Novartis Oncology, which aimed to better understand the challenges experienced by the ABC patient community at each stage of their journey.
The findings from this survey have not only furthered our understanding of the impact of ABC on patients’ lives, but have also raised a number of treatment aftercare issues that need to be addressed in order to improve the level of care and support for women living with ABC.
1. Results of the 2014 Realities of living with ABC survey commissioned by Novartis Oncology in the UK with 60 respondents living with advanced breast cancer distributed by Breast Cancer Care.
I am not the cancer' art installation
The UK Launch
I am not the cancer is a visual and sound installation which powerfully communicates the real-life experiences of patients living with ABC.
The installation provides patients with a platform to share their thoughts, experiences and emotions in order to raise awareness of advanced stage disease amongst both the breast cancer community and the wider public.
The installation was created by two critically acclaimed artists, John Wynne and Tim Wainwright.
John Wynne is a sound artist whose practice includes large-scale installations in galleries, museums and public spaces. He won the 2010 British Composer Award for Sonic Art for an installation which became the first work of sound art in the Saatchi collection.
Tim Wainwright has been involved in several critically acclaimed projects covering multiple topics including recording the lives of the severely mentally ill, of people living with cancer and of heart and lung transplant patients.
Abbott, P. The Invisible Woman: Unveiling the impact of advanced breast cancer on women, families, society and the economy across Europe. Sponsored by Novartis Oncology. November 2013.
Results of The Count Us, Know Us, Join Us survey 2013, commissioned by Novartis Oncology in 12 countries with nearly 1 300 total respondents living with advanced breast cancer including 79 in the UK. Conducted by Harris Interactive.