St James University Hospital, Leeds Teaching Hospitals NHS Trust
Project Name: Acute Adult Haemoglobinopathy Service Development Joint Working project
Joint Working Project Summary St James University Hospital, Leeds Teaching Hospitals NHS Trust (The Trust) covers a catchment population of 3.6m and takes referrals from Dewsbury, Harrogate, Pontefract, York, Airedale, Grimsby, Hull, Halifax and Huddersfield.
The joint working project (JWP) aims at improving the haemoglobinopathy service by increasing the Haemoglobinopathy Specialist Nurse’s (HSN) role from part time to full time. Increasing the HSN’s role to full time will enable the service to be improved through setting up an MDT clinic constituted by a specialist consultant and dedicated specialist nurse providing consistent haemoglobinopathy (HB) care to the patient population. In addition the service development aims to improve education to other health care professionals to ensure patient care is improved as well as implementing national disease guidelines/ management.
The project will also work to improve the transition process from paediatric to adult care and increase the number of patients receiving an annual review.
Expected Patient Outcomes for this Project
This joint working project aims to:
Ensure equitable and enhanced access and service for HB patients across the region and those patients referred in from outside the region.
Support education of HB especially sickle cell and thalassaemia with health care professionals (HCPs) and patients in order to enhance patient care. Prepare information and materials on the disease to support care and learning for HCPs and patients.
Capture and use project service data to demonstrate the service is benefitting patients and that the service is financially sustainable to St James University Hospital, Leeds Teaching NHS Trust.
Start Date & Duration: March 2018 – August 2019 Project Period: 18 months
Abertawe Bro Morgannwg University (“ABMU”) Health Board
Project Name: Creation of a Specialist Ambulatory Heart Failure (“HF”) service, located at Princess of Wales Hospital (Bridgend).
Joint Working Project (JWP) Summary:
The JWP aims at establishing a day clinic, to be known as the Specialist Ambulatory Care HF Unit for HF Patients, to provide specialist clinical care on an out-patient basis.
Expected Patient Outcomes for this Project: Targets for measurement and expected outcomes
Development of an in-patient strategy/protocol and implementation procedures to govern the clinical operations of the Heart Failure Ambulatory and Inpatient Service
Positive increase against the following baseline % measures as stated in the most up to date NICOR HF audit for the Princess of Wales Hospital:
Input from consultant cardiologist (%)
Input from specialist (%)
ACEI on discharge (%)
ACEI/ARB on discharge (%)
Beta blocker on discharge (%)
MRA on discharge (%)
Patient satisfaction linked to the heart failure Ambulatory and Inpatient Service (PREMS).
Start Date & Duration: March 2018 – February 2020
Project Period: 24 months
NHS Lothian and Novartis Pharmaceuticals UK Limited.
Project Name: NHS Lothian Nurse-led Spondyloarthropathy Service: Proof of concept Joint Working project.
Joint Working Project Summary:
This joint working project will pilot the introduction of a hospital-based, nurse-led AS and PsA service for patients being initiated on biologic therapy in NHS Lothian.
It is anticipated that this new model of care will improve: - the time from referral for biological therapy to initiation of treatment with a biological therapy due to the increase in capacity to see patients; and - the management and monitoring of AS and PsA patients post- commencement of treatment, in line with the NICE clinical guidelines (NICE guidelines 1-4).
There are four main objectives: 1. Development and provision of a tool, in the form of a database, to measure certain outcomes of the project 2. Develop a patient referral pathway into a new model of AS and PsA patient care, specifically a pilot nurse-led biological therapy initiation and review clinic 3. Utilise the new nurse-led service to improve consistency in and access to patient care by reducing the wait time to initiating a biological therapy and more regular monitoring by a nurse specialised in AS and PsA for all AS and PsA patients newly initiated on biological therapy. This will assist in delivering a service in line with the NICE guideline recommendations. 4. Using the evaluated model of care to assist NHS Lothian build an informed business case to fund the continuation of this or a similar service in the future and expand it to all patients in their current service.
Expected Patient Outcomes for this Project:
Consistency and access to patient care will be improved by ensuring more patients receive the optimal level of care described in NICE clinical guidelines, reduce the wait time to initiating a biological therapy, and be managed and monitored more regularly by a nurse specialised in AS and PsA.