The Royal Liverpool & Broadgreen University Hospitals NHS Trust
Project Name: Royal Liverpool & Broadgreen University Hospitals NHS Trust TSC Clinic Development - Merseyside Project Period: One year or if extended, two years
Joint Working Project Summary: The principal aim of this Joint Working Project is to improve care for patients with Tuberous Sclerosis Complex (“TSC”). It will provide a multidisciplinary team approach to treatment by establishing a multidisciplinary clinic for transition patients (from paediatric to adult)and adult patients to co-ordinate care across the Merseyside region. Specifically, this project will involve establishment of a care pathway and offering of a management service co-ordinated by a part time clinical nurse specialist.
Expected Patient Outcomes for this Project: Expected patient outcomes are as follows:
An improved clinic will provide access for TSC patients to all specialists involved in treatment of TSC, enhancing the flow in the patient journey.
This will result in a reduction in long wait times and disjointed care.
Consistent care will be delivered.
Patient outcomes will be improved.
Start Date & Duration: July 2017; duration 1-2 years
Project Name: NHS Grampian Oral Systemic Anti-Cancer Treatment (SACT) Service Development
Project Period: JWP initiated in July 2017 for 12 months; timelines extended until March 2019 to allow for recruitment and achievement of milestones. Following a review of year 1 progress, the Parties have agreed to re-define the timelines for year 2 in order to better achieve the JWP aims, objectives and intended benefits.
Joint Working Project Summary: The objective of this service development project will be to ensure treatment optimisation for lung cancer and melanoma patients within NHS Grampian by:
Facilitating equitable access to the lung and melanoma service for oral SACT treated patients in NHS Grampian.
Improving patient care by stratifying patients into different models of care dependent on their needs. This will include patients being treated within NHS Grampian or in their localhospital i.e. Dr Gray’s Hospital, Elgin, Balfour Hospital, Orkney or Gilbert Bain Hospital, Shetland. Enhancing patients’ experience whilst improving adherence and compliance to treatments in line with local guidance by providing a pharmacist/nurse led service (to include non-medical prescribing). This will include the pharmacist/nurse advising the patient on their disease, treatment options and adverse event management to ensure optimal treatment with improved patient outcomes.
Share ongoing project outcomes & learnings with other site specific NHS Oral SACT services and ensure NHS Grampian utilises the combined experience to support continual improvement and becomes a centre of excellence.
Capture service data and use it to build a business case that will aim to demonstrate that the new model of care in a pharmacist/nurse led service (to include non-medical prescribing) in lung cancer and melanoma is benefiting patients and is financially sustainable for NHS Grampian.
Expected Patient Outcomes for this Project:
Outcome 1: Improve patients’ clinical journey by developing a dedicated patient pathway for oral treated patients.
Outcome 2: Improve patient care, experience, satisfaction, concordance and adherence to therapy by developing a service that is patient-centric and focused on the individual needs and requirements of patients treated with oral systemic anti-cancer treatments.
Outcome 3: To ensure appropriate training to the nurse/pharmacist team to support the provision of a service that can ensure early access of oral cancer treatments to newly diagnosed lung cancer & melanoma patients.
Outcome 4: Demonstrate service sustainability to NHS Grampian.
Start Date & Duration: July 2017 – Feb 2020
University College London Hospitals NHS Foundation Trust
Project Name: Development of a new method for automated large-scale, high resolution/ high dimensional MRI in multiple sclerosis
Project Period: 24 months
The principal aim of this Joint Working project is the creation of an automated tool that enhances the sensitivity and specificity of MRI scan analysis enabling treating clinicians to make more timely, individualised treatment decisions and reduce clinical heterogeneity.
This joint working project entails the testing of a number of hypotheses in relation to the interpretation of results from diagnostic and disease progression monitoring controlling for the confounding effects of the clinical heterogeneity captured by conventional MRI.
To our knowledge, the Trust would be the first centre in Europe to create this approach to modelling clinical outcomes, and will share their expertise to inform best practice across MS centres in the UK.
Expected Patient Outcomes:
If successful, once fully developed the tool will ultimately allow clinicians to have access to highly sensitive and specific read outs about individual patients’ MRI scans to enable more timely treatment decisions.