ITP Patient Resources

What is immune thrombocytopenia?

Immune thrombocytopenia (ITP) is a rare autoimmune disorder which causes fewer platelets in the blood than usual, which in turn means that excessive bleeding and bruising are both common symptoms.1

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Planning and preparing for your consultation with your doctor are important to ensure all of your questions are answered. Download this discussion guide to help you prepare for questions your doctor may ask. Use it to help you make notes in advance of your appointment and to describe your symptoms. Find the latest information on the treatment and management of ITP outlined in our fact sheet below.

Downloads:

Interactive discussion guide button ITP fact sheet button

Fatigue & ITP:


Fatigue has been highlighted as a major symptom burden for those living with ITP. Rhona, Sameer and Olivia tell their individual stories of what it's really like to live with ITP related fatigue through an animated video. Hear their perspectives and advice for managing ITP in day-to-day life.

Live life with ITP

 

Meet our Live Life with ITP ambassador, Jonny Mellor, who was Britain's fastest male at the 2020 London Marathon. Jonny ran the marathon in an Olympic qualifying time despite living with ITP. Hear his inspirational story below and his advice for others living with the condition.

Jonny's Story

 

Niamh is a dietitian working for the NHS, living with ITP. She talks below about her journey and gives advice on how to live life with ITP, because platelets aren't the only thing that count.

Niamh's ITP Story


 

Our Live Life with ITP resources focus on giving you the support needed to understand more about your condition and to assist you on your ITP journey.

 

Find out more about ITP on our immune thrombocytopenia (ITP) overview page

 

Find out more about ITP in children

Want to learn more about ITP? You can follow our Facebook, Twitter and Instagram channels for regular information, updates and news.

References:

  1. Oxford University Hospitals NHS Trust. ITP Information for Patients (2015) [Fact sheet]. Retrieved from: https://www.ouh.nhs.uk/patient-guide/leaflets/files/12388Pitp.pdf Last Accessed: March 2022

  2. Provan D et al. Updated international consensus report on the investigation and management of primary immune thrombocytopenia. Blood Adv 2019; 3 (22): 3780–3817. doi: https://doi.org/10.1182/bloodadvances.2019000812

  3. Cooper, N. et al. Symptom burden in Immune Thrombocytopenia (ITP): Findings reported by UK patients and physicians from the ITP World Impact Survey (I-WISh). Abstract published in the British Journal of Haematology. Abstract BSH2020-PO-072

  4. Cooper, N. et al. The Impact of Immune Thrombocytopenia (ITP) on Activities of Daily Living: Findings reported by UK patients and physicians from the ITP World Impact Survey (I-WISh). Abstract published in the British Journal of Haematology. Abstract BSH2020-PO-035

  5. Cooper N, et al. Burden of disease in Immune Thrombocytopenia (ITP): The initial results for UK patients from the ITP World Impact Survey (I-WISh). The British Society of Haematology. 2018. Abstract BSH18-289.

UK I March 2022 I 188895

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